Frank Moore Updates

Well, today I went to my G.  P., John Good as a part of the process of getting a second opinion about having the operation to remove the PEG tube.  We have been emailing him about how the specialist [hereafter will be referred to as THE IDIOT] was not able to pull the tube out .  Doctor Good, like Doctor Kerbavaz, has been our family doctor for over thirty years.  In the  back of our minds we wished Good would try to pull the tube out.  But we didn’t think that was in the cards because after all the idiot specialist failed.  But when we told Good that the idiot was so uncomfortable around me that he would not talk to me the first time, that he asked if Linda and mikee really had to be in the room, that the people whose tubes he took out were normally comatose, etc, Good asked if I wanted him to try to pull it out because he shared our concerns about the operation.  Of course I said YES!  So after two strong pulls with the right intention, THE TUBE WAS OUT!  NO OPERATION NEEDED!  Dr. Good, like Kerbavaz, is my hero!  And I am typing this three hours later!

THE PERFORMANCE IS ON!

Stephen Emanuel wrote:
that’s the kind of second opinion we like…have fun at the performance!  Steve and Marjorie

Frank Moore wrote:
you can say that again, Steve!

Sandy Mock wrote:
Interesting, isn’t it, that the “specialist” couldn’t (or wouldn’t) do it, but Dr. Good did…HOORAY FOR DR. GOOD!!!!
SHIT TO THE IDIOT….GO BACK TO SCHOOL….

Frank Moore wrote:
EXACTLY!

Dr. Richard Kerbavaz wrote:
Perfect solution!!

Frank Moore wrote:
exactly!

Claudette Bibb wrote:
How brilliant!! Sounds so easy after all the anxiety caused by THE IDIOT. Wonderful news for you all.

Frank Moore wrote:
exactly, Claudette!

Betsy wrote:
Frank that is wonderful!!! I work with lots of kids with pegs, but unfortunately they typically have to have it because they cannot swallow nor chew to be safe. SO, good for you, glad everything worked out, I applaud you for speaking up and asking questions. Sounds like you had a great visit with our buddy Steve. I keep track of him through you! I miss him, we sure had some good times.
Have a wonderful holiday season with all your family,
Love,
Betsy

Frank Moore wrote:
hey, Betsy!  I learned a long long time ago they often don’t know what the fuck they are talking about and they can put a fatal curse on you if you
fall for it!  I never have!

Yep, our tribe is still intact after forty years or more!  Great visit with Steve and his mate!

Paul Escriva wrote:
Hot damn!

Eda Malenky wrote:
what a story!  what a GREAT story!  Good for you  (haha)!  i’m really so glad.  wish i could have a doctor Good in NY. 

it’s gotten cold here, but lovely.  we still picked a few raspberries in our backyard.  after alan and our upstairs neighbor/tenant buried her cat there today (poor kitty had feline leukemia and deteriorated suddenly and quickly while she was away 4 wks taking care of her mom in Minneapolis, where btw, it got to 11 degrees.)

so, time for me to get ready for bed so i can get warm from Alan’s fur.

again, so glad.  lots of love, eda

Frank Moore wrote:
and ain’t that what living is all about?  Creating great stories to re- tell!

Michael Diehl wrote:
Hi Frank and Linda.
Well it is hard to keep a good man like you down for long. I have been struggling with some of my own physical and mental disabilities but part of what gets me through the dark tis the season to be jolly is hearing you on Crack of Dawn singing Christmas songs. Here’s to your long life. You are an inspiration of how to beat the odds by being even odder!
Ho ho ho,
Michael Diehl

Frank Moore wrote:
well, Michael, this places a great sacred responsibility over my head!  But I will do my duty tonight!  Keep in mind I just had my trach out, so my voice is untested!  The odds are more odd!

Ah, well, today at the doctor’s office, my PEG [feeding] tube [which I had to let them put in to get out of the hospital] didn’t /wouldn’t come out even after a couple of hard yanks…  Which turns out to happen in five percent of cases [this was the first time I heard that fact].  So I need to go to the hospital for an operation to remove it.  So there is at least one more hoop to jump through in this journey!  It also turns out most people keep their tubes in for forever!  So removing them ain’t an everyday affair!  Again that is the first time I heard that!

Annie Sprinkle wrote:
Shit.
Happy thanksgiving!
Annie

Frank Moore wrote:
exactly, Annie!  Well put!  We decided to slow the process way down, cancel the operation, get other options and opinions.  Another risk of that “procedure” is tearing the Esophagus !  If that happens, you would need a PEG feeding tube, etc!  I don’t know yet
the odds of that happening…  But…

Paul Escriva wrote:
Oh shit Frankie….
sorry to hear this.
Conversely, I’m glad you are well enough not to need a PEG.
Odd that this is the first time you’re hearing the scoop!
Paul

My trach was taken out today!

Jeff Snyder wrote:
That’s wonderful news! Congrats Frank.
~ Jeff Snyder

Frank Moore wrote:
ah, thanks, Jeff!

——– Original Message ——–
Subject:
Re: From Frank
Date: Sat, 3 Jul 2010 14:38:21 -0700 (PDT)
From: jeremy watts
To: Linda Mac

Frank, you are the weirdest motherfucker I have ever met.  Please know that you are in our thoughts… naked.  ; )

——– Original Message ——–
thanks, Jeremy!

In Freedom,
Frank Moore
http://www.eroplay.com
http://www.luver.com
facebook: Love Underground Visionary Revolution
facebook group: The Universal Underground Video Bank
http://www.facebook.com/group.php?gid=117921371580943&ref=ts

Kerbavaz replied: “Great to hear restaurants are back on the agenda!!”

We went to the doctor’s today.  She ok’d the  start of the process of the removing of  the trach.

But the big news….  On our walk back to the car, we stopped in at Mokka (the great Cafe where the guys got their coffee during my hospital stay… We kept saying just wait until I am eating again!)  I suggested we could drop in there!  I ate a bowl of raspberry sorbet! Yum!  I  had no problem. First time eating in a restaurant since the hospitalization. It’s a big day around here!

Yesterday Ann Cohen came over to do a very magical concert of Songs and poems.  Some of the poems  were by her late husband, Allen…  a major alternative cultural figure of the sixties [the force behind the San Francisco underground paper THE ORACLE and the organizer of THE BE- IN [trying to bring the San Francisco hippies and the Berkeley political activists together].

Ann is a force herself…  playing her hand-made harp as we talked, making up Songs jamming with what we were saying.

We were kids in Ann’s school for tots.

When we were talking about Louise Scott [who opened everything up for me forty years ago], Louise called right then.  Magic.

Today is a sad day  here.  We have to say Good-by to Kittee, our twenty year old Siamese cat. He waited until we got back home from hospital. He spent the last weeks on my lap night and day … Very demanding. 

Even when he couldn’t hardly walk, he climbed aboard.

(Hours later)

They brought his body back home to be put in our back yard with the other two.  He has gone to the vet’s almost every day for fluids for over a year.  He established relationships with every person there (they would talk to him, not to us).  So he went to sleep among his adorating fans as well as Linda and Mikee.  What a way to go.

Paul Escriva wrote:
Hi Frankie,

Sorry to hear that Kittee passed on.
I can remember when I met him in 1993….
The first time I walked into the house he looked across the room and very loudly talked to me.
Later that night he found his way into the bedroom.
I awoke with him tip-toeing across the back of my pillow until he settled down and decided to curl up on the end of the futon for a little snooze.

Heaps of hugs to everyone,

Paul

Lob & Yvette wrote:
very sad Frank.. sorry to hear of Kittee’s passing.
hugs and condolences to you and the family.

Lob & Yvette

Diana L. Battle wrote:
Frank,
So sorry to hear that. I am going through the fluid thing with my 14 yr old kitty,Cleo now.. They can be so comforting.

Annie Sprinkle wrote:
Thinking of you, here in West Virginia, when I read about your cat.
So sorry that you loose this precious member of your family.

Better to have loved and lost…

Blessings.
Annie
Sending world’s sexiest and biggest flower for funeral. by email.

Frank Moore wrote:
yes, Annie, we miss him.  But we had time to hang out with him.  You lost your cats in the fire without a warning.  That must be harder.

Possibilities!

In the hospital several nurses said to me separately that they always thought that they needed kids so  they would have someone to take care of them when they got old.  But when they saw how we six were tribally taking care of one one another, they realized that there are many different ways, many kinds of families.  It blew them out how were there for one another.
In Freedom,
Frank Moore

Dr. Richard Kerbavaz replied:
Indeed!  I had several of the nurses and therapists comment about how well everyone was able to pull together to help Frank.  That’s a pretty good working definition of what family is all about
rk

Frank Moore replied:
exactly!  And it was day-to-day for six weeks, so they saw it wasn’t just show…  But very practical down to earth love /intimacy /tribal body that operates effectively uNder hard situations.

Btw, RK is doctor Kerbavaz, my ent for over twenty years…  But much more!  A dear friend!  He is on the e-salon.  He put in my trach, and basically is over seeing my recovery.  We email him questions almost daily !  he even checked in on me on his camping trip!

Annie Sprinkle replied:
Wow Frank and Family.
Thanks for showing us the way to do hopsitols and aging and illness as love and art.
Very inspiring.
You should be so super proud of yourselves for being so phenomenal and special.
Annie

Frank Moore repilied:
yes annie, life always gives you opportunities to do possibilities-opening art.  The emails I got were my first sign that it wasn’t just my personal situation that was involved.   many demanded me to do my duty and live to  do more trouble-making magic together.  There was a thick pile of them before I was in any shape to understand reading them.  But when I was, a lot of them said i better not die or else.

There are a lot of layers of this “piece “…  The RECOVERING CAM…  A great female singer (Kaitlin McGaw) came over last week to give us a concert…  Tomorrow a reporter (my nurse’s brother) is coming to interview me about IHSS….  So you never know what a piece will lead to.  But this is a little extreme even for me…  Although I did do DYING IS SEXY before.

Kaitlin McGaw replied:
You guys are so dear. Thanks for sharing, Frank and Linda!
Stay full of life, joy and love.

Kaitlin

Frank replied:
Kaitlin, it meant a lot to me that you came and sang to us.